Multiple Sclerosis (MS) Awareness Month can be identified in the month of March; But thanks to MS sick leaders, finding support, raising awareness, and getting education happens throughout the year.
Because advocacy doesn’t stop when you live with an autoimmune immune system that affects your daily life.
And whether or not you have personal experience with multiple sclerosis, we can all play a role in uplifting and sustaining the MS community as well. That’s why we invite you to learn about some of the powerful sick leaders who won this bet.
These people are showing every MS patient that your diagnosis does not define you, that you can still live a full life despite your old condition, and that the community that understands you can change your entire health journey.
Are you ready to keep up the pace?
Here are 10 sick leaders you need to connect with today:
Trishna is an MS patient leader who focuses on working with many stakeholders to make the patient’s voice louder, stronger and more effective during the healthcare journey. As the winner of the 2021 WEO Health Award Healthcare Collaborative, Trishna is proof that there is power in the voice of the patient and the value of patient support. Learn more about the effects of Trisha here.
Devin’s experience with MS began as a child, caring for his grandfather who was suffering from the condition. At age 21, Devin found himself in the role of a patient because he too had been diagnosed with multiple sclerosis. Devin is now committed to sharing his surviving experiences and supporting those facing diagnosis. “My goals have always been to raise awareness about the disease, but also to help victims understand that there are others who understand them and show that they are not alone,” he says. Learn about Devin’s advocacy work here.
In an MS patient himself, Ritu knows the importance of receiving and understanding information that can seriously affect the MS experience. Ritu is the host of the podcast, 10 minutes for MS, Where she lives with MS experts and warriors to raise awareness, share knowledge, and expand the untold stories of those struggling with MS around the world. He is also the founder Multiple Sclerosis.Awareness, A community dedicated to the education and upliftment of MS warriors and caregivers. Follow Itu Tu and her MS on Instagram.
Discovered a year ago, Rachel herself is experiencing the challenges and lessons that come from navigating a new MS diagnosis. Despite this, she is finding her strength and celebrating the victory – reflecting the importance of the community and seeking support as part of any treatment plan. She shares, “Multiple sclerosis can be a daunting challenge. One day you may feel strong and resilient, but the next day you may feel helpless and lonely. These days, as you get pushed or pushed by others, you can make all the difference. . ” Stay up to date on Rachel’s journey.
This WEO Health Award Lifetime Achievement Winner has been advocating for the MS community for over MS0 years! She is truly a role model when it comes to being a sick leader, and someone advises us all to follow new sick leaders. She says, “I was diagnosed with multiple sclerosis in 1986. There was no approved medicine or internet. I was scared and angry. My doctor told me to go home, to rest, and to call if I had a frog. When I realized. That my life goal is to help others with MS feel less lonely and fearful, empowering, educating and motivating them to live positive lives within their potential. ”Cathy’s passion for improving patient experience is evident, and her transformation into healthcare Her commitment to advocacy is clear on all sides. Discover the impact Kathy is having here.
Goffrey is an MS patient leader who balances his own health with the needs of his children. He and his wife committed to raising medically weak children, which he later adopted. As a person navigates all the stages of a sick journey, he realizes the importance of getting both the right information and hope on both days. “For all our medical tests, we have a very lucky family and the road is sometimes hard, beautiful,” he says. Learn more about Jeffrey and his family.
Kevin is an ultra runner who proves that an MS diagnosis does not define him and does not make him dull. He is currently raising funds to help those affected by MS and is on the hook to raise डलर 10 by running 110 miles in 22 hours! He aims to raise awareness for the condition and remind fellow MS patients that they can still move the body and seek health despite their diagnosis. Follow Kevin’s fundraising journey.
Tasha is an MS sick leader and creator of Chronic Fearless Blog – which welcomes all women who choose fearlessness in times of chronic illness and / or difficulty. Tasha’s community focuses on sharing resources, experiences and support for each other – reminding warriors to be tough, beautiful, and most of all fearless. Make sure to add this MS Warrior to your social feeds!
Crystal is an MS warrior and sick leader who has been enjoying the thrill of living with MS since childhood through her Instagram and YouTube platforms. He performs everything up, down and in between. Her uplifting and inspiring yet clear posts remind patients that there is still much to celebrate, despite the challenges this situation brings. Follow Crystal’s MS Journey.
Carlos Kareem Windham
Carlos Kareem Windham is an MS Warrior, artist and organizer who has been performing for a good portion of the audience for the past two decades and speaking with students, teachers and organizers on stage and in classrooms around the world. Through storytelling, songs, or stand-up comedy, Carlos ’work focuses on the relationship between race, class, and gender in the United States and abroad. When it comes to chronic illness, he advises to tease others, otherwise, it will not be really fun! Connect with Carlos on Instagram
WEGO is partnering with Health # CHATMS To reflect back on #MSAwarenessMonth and explore how we can continue to raise awareness even after March th0. Let’s come together as a community at Breststorm to see how we can keep pace throughout the year! Add your input by joining #ChatMS on Twitter on Monday, March 2nd at 7pm ET.